PNH Canada: Living better with the NHP on a day-to-day basis in four languages, in sixteen countries


For the HNP Canada Association, ALICE created the Living Well with PNH Guide for people living with PNH, a rare genetic disease. It is a multilingual resource for the well-being of people affected by PNH through a comprehensive approach that addresses nutrition, physical exercise, and mindfulness yoga, among others. It contains valuable advice from recognized experts. The guide is free and includes downloadable modules delivered by email over an 8-week period.